Muscular Dystrophy Association

From Wikipedia, the free encyclopedia

The Muscular Dystrophy Association (MDA) is an organization founded in 1950 which combats muscular dystrophy and diseases of the nervous system and muscular system in general by funding research, providing medical and community services, and educating health professionals and the general public.

The MDA is most famous for the nationwide telethon it holds on Labor Day each year. Begun in 1966, it is hosted by Jerry Lewis, who has supported the MDA since its inception. Lewis's support has been so ironclad over the years that children assisted by the MDA are referred to as Jerry's Kids. In 2006, the annual Labor Day Telethon raised US$61 million. In 2005, the MDA made the unprecedented decision to pledge $1 million of the telethon's money raised to Hurricane Katrina disaster relief, making the donation specifically to the Salvation Army (though the telethon also urged viewers to give to the Red Cross).

The MDA targets the following muscular dystrophy diseases:

  1. Duchenne muscular dystrophy
  2. Becker's muscular dystrophy
  3. Emery-Dreifuss muscular dystrophy
  4. Limb-girdle muscular dystrophy
  5. Facioscapulohumeral muscular dystrophy
  6. Myotonic dystrophy
  7. Oculopharyngeal muscular dystrophy
  8. Distal muscular dystrophy
  9. Congenital muscular dystrophy

It also targets the following:

  1. Amyotrophic lateral sclerosis
  2. Infantile spinal muscular atrophy
  3. Juvenile, Intermediate, and Adult spinal muscular atrophy
  4. Spinal bulbar muscular atrophy
  5. Dermatomyositis
  6. Polymyositis
  7. Inclusion body myositis
  8. Myasthenia gravis
  9. Lambert-Eaton myasthenic syndrome
  10. Congenital myasthenic syndrome
  11. Hyperthyroid myopathy
  12. Hypothyroid myopathy
  13. Charcot-Marie-Tooth disease
  14. Friedreich's ataxia
  15. Dejerine-Sottas disease
  16. Myotonia congenita, both Thomsen's and Becker's Disease
  17. Paramyotonia congenita
  18. Central core disease
  19. Nemaline myopathy
  20. Myotubular myopathy (Centronuclear myopathy)
  21. Periodic paralysis, both Hypokalemic and Hyperkalemic
  22. Mitochondrial myopathy, a mitochondrial disease

It also targets muscle diseases due to deficiencies in carnitine and the following enzymes:

  1. Phosphorylase
  2. Acid Maltase (Pompe's disease)
  3. Phosphofructokinase
  4. Debrancher enzyme (also known as Amylo-1,6-glucosidase); a glycogen storage disease also known as Forbes disease
  5. Carnitine palmityl transferase
  6. Phosphoglycerate kinase
  7. Phosphoglycerate mutase
  8. Lactate dehydrogenase
  9. Myoadenylate deaminase

The MDA's national headquarters are in Tucson, Arizona. Its most visible fundraising event is the "Jerry Lewis MDA Telethon" held every Labor Day weekend since 1966.

The MDA and Jerry Lewis have been criticized by some disability rights activists for their tendency to paint disabled people as "pitiable victims who want and need nothing more than a big charity to take care of or cure them."[1] Critics argue that focusing the public's attention on medical cures to "normalize" disabled people fails to address issues like providing accessible buildings, transportation, employment opportunities and other civil rights for the disabled.[2]

According to a Better Business Bureau summary released in February 2004:

  • The MDA oversees a network of 230 hospital-affiliated clinics providing diagnosis and treatment;
  • In 2003, 4500 children and young adults, between the ages of 6 - 21, attended week-long summer camps sponsored by the MDA;
  • Research and clinical trials on treatments for Lou Gehrig's disease are conducted in 30 MDA/ALS centers;
  • The MDA has a paid staff of 1353 people;
  • Of the $166.5 million donated because of fund-raising activities (mostly its annual telethon), 17% of that was spent on the fund-raising activities themselves.

Charity Navigator which is the largest independent evaluator of charities, gives MDA only two out of four stars for organizational efficiency and fiscal health MDA Charity Navigator Rating

 v  d  e Muscular Dystrophy
The Nine Primary Muscular Dystrophies
Becker'sCongenitalDuchenneDistalEmery-DreifussFacioscapulohumeralLimb-girdle muscular dystrophyMyotonicOculopharyngeal
Other diseases generally classified as Muscular Dystrophy
Spinal Muscular Atrophies Amyotrophic lateral sclerosisInfantile Spinal Muscular AtrophyIntermediate Spinal Muscular AtrophyJuvenile Spinal Muscular AtrophyAdult Spinal Muscular Atrophy
Inflammatory Myopathies DermatomyositisPolymyositis
Diseases of Peripheral Nerve Charcot-Marie-Tooth diseaseDeJerine-Sottas DiseaseFriedreich's Ataxia
Diseases of the Neuromuscular Junction Myasthenia gravisLambert-Eaton myasthenic syndrome
Metabolic Diseases of the Muscle Acid Maltase Deficiency • Carnitine Deficiency • Carnitine Palmityl Transferase DeficiencyDebrancher Enzyme Deficiency • Lactate Dehydrogenase Deficiency • Mitochondrial MyopathyMyoadenylate Deaminase DeficiencyPhosphorylase DeficiencyPhosphofructokinase Deficiency • Phosphoglycerate Kinase Deficiency
Less Common Myopathies Central Core Disease • Hyperthyroid Myopathy • Myotonia CongenitaMyotubular MyopathyNemaline myopathyParamyotonia CongenitaPeriodic paralysis
Organizations and National events
Muscular Dystrophy AssociationJerry Lewis MDA TelethonNational Institute of Neurological Disorders and StrokeNational Institute of Arthritis and Musculoskeletal and Skin Diseases


Advanced Search
Included Web Search Engines


Safe Search

close

Top Matching Results

Occasionally Search.com will highlight specialized results that are based on the context of your query. Examples of specialized results include specific links to news, images, or video.

Top Matching Results may highlight information from other Search.com pages, content from the CNET Network of sites, or third party content. The listings are based purely on relevance. Search.com does not receive payment for listings in this section but our partners that provide this data may get paid for listing these products.

Sponsored Links

This section contains paid listings which have been purchased by companies that want to have their sites appear for specific search terms and related content. These listings are administered, sorted and maintained by a third party and are not endorsed by Search.com.

Search Results

Search.com sends your search query to several search engines at one time and integrates the results into one list which has been sorted by relevance using Search.com's proprietary algorithm. You can customize the list of search engines included in your metasearch from the preferences.

The search engines that are used in your metasearch may allow companies to pay to have their Web sites included within the results. To view the Paid Inclusion policy for a specific search engine, please visit their Web site. Search.com does not accept payment or share revenue with any search engine partner for listings in this section.