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Directory Sites
Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
www.fraxsocal.org
FRAXA Research Foundation Home Page
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
www.fraxa.org
Fragile X Syndrome - Diagnostic and Carrier Testing
A Policy Statement from the American College of Medical Genetics.
www.faseb.org
Single page on recognition of the condition in young children.
home.coqui.net
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
www.fpg.unc.edu
Creating a virtual research center in Israel to find a cure.
www.conquerfragilex.org
Support group for Family's who are dealing with Fragile X Syndrome.
groups.yahoo.com
One family's account of raising 3 children with Fragile X.
fragilex.ca
Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in Australia
www.fragilex.org.au
The National Fragile X Foundation
Features information about the disease, its treatment, and inheritance.
www.fragilex.org
Maryland Fragile X Resource Group
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
www.mdfragilex.org
Fragile X Research Foundation of Canada
Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
www.fragile-x.ca
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
www.pediatriconcall.com