Directory Sites

  • MyCysticFibrosis.com

    Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.

    www.mycysticfibrosis.com

  • Cystic Fibrosis Resource Center

    Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.

    www.healingwell.com

  • Cystic Fibrosis Health FactSheet

    Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format

    hcd2.bupa.co.uk

  • Cystic Fibrosis Links

    Cystic Fibrosis Links and Information

    www.goodgulf.com

  • The Breathing Room

    Guidance about the art of living with cystic fibrosis.

    www.thebreathingroom.org

  • Jewish Genetic Diseases - Cystic Fibrosis

    Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.

    www.mazornet.com

  • CF Prescriber

    Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.

    www.cfprescriber.com

  • The Spirit of Lo - Inspirational Book

    Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.

    www.spiritoflo.com

  • Cystic Fibrosis Medicine

    Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family

    www.cysticfibrosismedicine.com

  • Cystic Fibrosis Resource Centre

    A source of information for cystic fibrosis patients, parents, doctors and other carers.

    www.cysticfibrosis.co.uk

  • Home Page-Harminder

    Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.

    student.biology.arizona.edu

  • Irri Shark's Page

    About the '65 roses' story.

    hometown.aol.com

  • A-Z Directory of Cystic Fibrosis Resources

    Biomedical directory with listings of hospitals, charities, research, and information by topic and location.

    www.cellscience.com

  • CysticFibrosis.com

    Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.

    cysticfibrosis.com

  • Medline Plus - Cystic Fibrosis

    A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.

    www.nlm.nih.gov

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